As far back as Tanya Sumka’s kids were youthful, she has reminded them — regardless of whether they’re making natively constructed perogies or doing laundry — “you have to realize how to do this, on the off chance that I’m not here.”
In prior years, they accepted it was on the grounds that she may be in the medical clinic. At the point when her little girl was a baby, Sumka was determined 12 years prior to have viral cardiomyopathy — a contamination that causes intense irritation and shortcoming of the heart muscle.
Throughout the years, Sumka’s condition declined, however she kept on attempting to live as would be expected an actual existence as could be expected under the circumstances. Despite everything she took her two kids to Ukrainian move exercises and delighted in investing energy with her better half on their land.
In any case, three years prior — around the time she had a left-ventricular help gadget (LVAD) embedded — Sumka was stunned to gain from specialists that she would require a heart transplant in the long haul.
“It resembled a punch in the gut,” Sumka said existing apart from everything else she got the news. “What’s life like after a transplant? It’s a universe of the obscure.”
Since August 2018, Sumka has been anticipating a heart transplant with the expectation that she can keep on being there for her kids as far as might be feasible. Until further notice, she is associated with the LVAD 24 hours out of every day, constraining her versatility.
Her story features the difficulties looked by around 500 Albertans every year, who look out for a transplant rundown and sit tight for a call that could transform them.
What does the possibility of a heart transplant intend to Sumka? “To have another opportunity at as yet having the existence that I know, that I conceivably could have an additional 20 years to see my youngsters grow up (and) to offer importance to whatever piece of life despite everything I have,” she said. “That is my fantasy.”
Sumka recognizes that a transplant is no simple fix. For those needing a heart, it requires months or even long periods of recuperation from a saddling and complex medical procedure. Also, it implies taking a clothing rundown of drugs for an amazing rest.
A few days, she stated, the monstrosity of the method overpowers her, as does the truth that a giver life will be lost in the event that she gets a heart.
“Tragedy accompanies the endowment of life,” Sumka said. “Also, it’s an exceptionally hard thing to get around.”
The help of the medicinal and transplant groups at the University of Alberta Hospital and Mazankowski Heart Institute has been priceless on those long periods of uncertainty and battle, she said.
“They are energetic with all their understanding,” said Sumka of her group at the U of A.
She trusts that by sharing her story, she can spread mindfulness encompassing the difficulties of being a transplant tolerant when “it is a great deal more confused than being on a rundown.” Most individuals Sumka converses with don’t comprehend it’s not as straightforward as standing by.
“It is a supernatural occurrence,” she said. “What’s more, you have the duty to benefit as much as possible from it, since it’s (the donor’s) heritage.”